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7 days to go on Incivek, this is one week only, I hope I can make it 02/13 - 7
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nzkiwilife Yipee!!!!
02/13
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ceanothus Isn't that a great feeling to be closing in on the end of the worst part? When I finished the incivek it took a few days to start feeling better, but by the end of a week I actually felt great. That lasted a week or so, so be ready to take full advantage!
02/13
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srw920 Hang in there just a little longer :-). You Rock!
02/13
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Diana66 Thank you all, 6 days now :), blood counts are terrible though, platelets at 42, lymphocytes at 0.45 !!! Doing well with hemoglobin at 101
02/13
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Revalation I think you've mastered the Incivek challenge. Just hang tough a little longer!
02/13

Recent Status Updates

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1 year after tx and I continue to feel worst than I have ever been before tx.  Life is miserable right now and I reached new levels of pain. Joints are swelling, sleep is a memory Oct 03 - 8
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Diana66 Just had some blood tests and they are not looking bad which is what is annoying. RA factor is <10, CRP <3, ESR is 12 so according to bllod results - no inflammation. ALT is 26, Bilirubin 15, AFP is 72 - is this normal?? Iron is better, I know, cray
Oct 04
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timothy141 Diana, I am really at a loss to say anything. My issues seem slight compared to those you have had to deal with. And yet we both started and completed tx at the same time time. But I understand your frustration. With not finding anything wrong.
Annoying!!
Oct 04
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mzkity Is your AFP normal? Does it say it's within normal range? Your taking good vitamins. Maybe ask about CoQ10. Might help with energy. I think you and Tim treating for a year just might take longer. Still wishing you better days ahead!
Oct 04
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Diana66 Low energy, really sore joints. I feel sometimes at night that I have ants moving in. I cannot sleep from pain. Ankle is swollen, I cannot wear heels. I really do not want to start and take more pills. Yea, I took lots of Q10 but I am starting it again.
Oct 04
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dustbear Hi Diana, I remember you from last year. I am sorry to hear about your pain. I too have joint pain in my hips, knees and balls of feet a year after tx. Let's hope the curcumin helps you.
13 hrs ago
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10 months after tx and I continue to feel worst than I have ever been before tx Aug 22 - 1
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Verdugo Sorry to hear this Diana.  U've been thru so much and deserve to feel better soon.  Are u happy with your medical team?  Real healing usually takes a long time but if u are showing no improvement maybe it's time to find a new doctor.  Wishing u the best.
Aug 24
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mum just had a quadruple bypass. All your post tx pain and aches go away when you have to focus on someone else Apr 09 - 2
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Shyrlgame I hope your mom is recovering well from her surgery.  It's a long haul for sure, and I hope you are doing well too Diana.  This is a lot to go through but you are one tough lady!  Best wishes and Congrats on your SVR!
May 10
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Dee1956 Oh no! .I hope all is well, thinking of you Diana, take care Dee
May 10
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is SVR !! Wonder why do I feel like mneh... Mar 20 - 8
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dontworry_behappy1 Give it some time....you had a lot going on.   That's really great news....I'm happy for you!
Mar 21
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ActingBrandNew Congrats on SVR and I do hope you start to feel better.
Mar 21
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LN55 Congrats Dianna!! I am very happy for you!
Mar 22
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Diana66 Thank you all, it would have been very difficult without your support. I really hope that in another few months things will be better.
Mar 23
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Shyrlgame Congrats!  Best wishes for continued improvement.
Mar 26
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had blood drawn for the. 6 months post EOT. I feel worst than I ever felt ever. So much for the tx and the claimed benefits. How does that help if I feel like my life has been sucked out of me? Plus lots of physical symptoms I never had Mar 18 - 4
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nzkiwilife There seems to be lots of info of people who felt worse after tx than before. I hope it's temporary for you!! Even on this website, there are people who have come out of the woodwork to admit that the tx changed their lives for the worse not better.
Mar 20
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nzkiwilife I sure hope for us that it is temporary and just ongoing issues while the drugs leave our system. It's still too early to tell imo.
Mar 20
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Geshmit Hi - did you do a new treatment or SOC interferon? Interferon takes a long time to leave your body, with  many side effects in its wake. I did a Gilead all oral (interferon-free) trial and while I've cleared the virus, it is taking time for me to recover
Mar 20
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Diana66 hi Geshmit - I have done the triple - Interferon, Ribavirin and Telaprevir.
Mar 20
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