Status

Blank
7 days to go on Incivek, this is one week only, I hope I can make it 02/13 - 7
Showing 5 of 7 See All
Avatar f tn
nzkiwilife Yipee!!!!
02/13
1840891 tn?1431551393
ceanothus Isn't that a great feeling to be closing in on the end of the worst part? When I finished the incivek it took a few days to start feeling better, but by the end of a week I actually felt great. That lasted a week or so, so be ready to take full advantage!
02/13
Avatar f tn
srw920 Hang in there just a little longer :-). You Rock!
02/13
3093770 tn?1389742726
Diana66 Thank you all, 6 days now :), blood counts are terrible though, platelets at 42, lymphocytes at 0.45 !!! Doing well with hemoglobin at 101
02/13
1986676 tn?1329866071
Revalation I think you've mastered the Incivek challenge. Just hang tough a little longer!
02/13

Recent Status Updates

Blank
1 year after tx and I continue to feel worst than I have ever been before tx.  Life is miserable right now and I reached new levels of pain. Joints are swelling, sleep is a memory 10/14 - 8
Showing 5 of 8 See All
3093770 tn?1389742726
Diana66 Just had some blood tests and they are not looking bad which is what is annoying. RA factor is <10, CRP <3, ESR is 12 so according to bllod results - no inflammation. ALT is 26, Bilirubin 15, AFP is 72 - is this normal?? Iron is better, I know, cray
10/14
4705307 tn?1447973922
timothy141 Diana, I am really at a loss to say anything. My issues seem slight compared to those you have had to deal with. And yet we both started and completed tx at the same time time. But I understand your frustration. With not finding anything wrong.
Annoying!!
10/14
4670047 tn?1375734001
mzkity Is your AFP normal? Does it say it's within normal range? Your taking good vitamins. Maybe ask about CoQ10. Might help with energy. I think you and Tim treating for a year just might take longer. Still wishing you better days ahead!
10/14
3093770 tn?1389742726
Diana66 Low energy, really sore joints. I feel sometimes at night that I have ants moving in. I cannot sleep from pain. Ankle is swollen, I cannot wear heels. I really do not want to start and take more pills. Yea, I took lots of Q10 but I am starting it again.
10/14
5249831 tn?1407717326
dustbear Hi Diana, I remember you from last year. I am sorry to hear about your pain. I too have joint pain in my hips, knees and balls of feet a year after tx. Let's hope the curcumin helps you.
11/14
Blank
10 months after tx and I continue to feel worst than I have ever been before tx 08/14 - 1
215858 tn?1420175156
Verdugo Sorry to hear this Diana.  U've been thru so much and deserve to feel better soon.  Are u happy with your medical team?  Real healing usually takes a long time but if u are showing no improvement maybe it's time to find a new doctor.  Wishing u the best.
08/14
Blank
mum just had a quadruple bypass. All your post tx pain and aches go away when you have to focus on someone else 04/14 - 2
5720485 tn?1373566655
Shyrlgame I hope your mom is recovering well from her surgery.  It's a long haul for sure, and I hope you are doing well too Diana.  This is a lot to go through but you are one tough lady!  Best wishes and Congrats on your SVR!
05/14
317787 tn?1465993311
Dee1956 Oh no! .I hope all is well, thinking of you Diana, take care Dee
05/14
Blank
is SVR !! Wonder why do I feel like mneh... 03/14 - 8
Showing 5 of 8 See All
2059648 tn?1439770265
dontworry_behappy1 Give it some time....you had a lot going on.   That's really great news....I'm happy for you!
03/14
4113881 tn?1415853876
ActingBrandNew Congrats on SVR and I do hope you start to feel better.
03/14
Avatar m tn
LN55 Congrats Dianna!! I am very happy for you!
03/14
3093770 tn?1389742726
Diana66 Thank you all, it would have been very difficult without your support. I really hope that in another few months things will be better.
03/14
5720485 tn?1373566655
Shyrlgame Congrats!  Best wishes for continued improvement.
03/14
Blank
had blood drawn for the. 6 months post EOT. I feel worst than I ever felt ever. So much for the tx and the claimed benefits. How does that help if I feel like my life has been sucked out of me? Plus lots of physical symptoms I never had 03/14 - 4
Avatar f tn
nzkiwilife There seems to be lots of info of people who felt worse after tx than before. I hope it's temporary for you!! Even on this website, there are people who have come out of the woodwork to admit that the tx changed their lives for the worse not better.
03/14
Avatar f tn
nzkiwilife I sure hope for us that it is temporary and just ongoing issues while the drugs leave our system. It's still too early to tell imo.
03/14
Avatar m tn
Geshmit Hi - did you do a new treatment or SOC interferon? Interferon takes a long time to leave your body, with  many side effects in its wake. I did a Gilead all oral (interferon-free) trial and while I've cleared the virus, it is taking time for me to recover
03/14
3093770 tn?1389742726
Diana66 hi Geshmit - I have done the triple - Interferon, Ribavirin and Telaprevir.
03/14
Post Comment Cancel
See All >