About Me: Female, 34, Winston Salem, NC, member since Aug 2008
Well everything was normal until 6/08, when my daughter got sick while on vacation, and has since been diagnosed with conversion disorder.... no tramautic events in her life... and today it still remains a mystery... her only symptom now is the blindness... on here to s
[More]eek advice and support.
We are getting her some help so maybe by getting onto it early will spare her the tragedy of this horrible Disorder.
I also understand the publics lack of education and yes, its hard to go out into public like this. I have found there is more dignity in a wheelchair. And that is very ironic.
Just don't give up and please stay in touch. I care about you guys and this thing called conversion disorder. I have spent a lot of time learning about it and I can tell you the doctors have no clue about the symptoms. They go by early text book opinions. It doesn't cut it in my world. Stay in touch. Tami Give the young one a big hug. Never give up!!!!!!!!!!
You are not alone in this. I understand your frustration and pain. I too, have on many occasions wished that they would actually find something organically wrong with me so we would have a direction to go in but I guess the bottom line is that there are organic diseases where they can do nothing also. So I quit going there. Took me awhile but I finally excepted that it is what it is. But I don't have to sit and watch my daughter suffer through it although,my 14 year old daughter has not gone unscathed. And there is a 50% chance she may develop this also. I feel she is headed down that path. She has high anxiety and depression and ADD. A chip off the old block. I just hope and pray that she will be strong enough to not let the anxiety and depression and ADD control her.
You are in my thoughts and prayers. Your heart must be breaking right now. It is very hard to see loved ones hurt and suffer especially younguns. Just know you are not alone in this Disorder. I had an episode the other day where I couldn't open my eyes for an hour or so. and as soon as my eyes opened, my jaw locked up. doctors are standing there asking you questions and you can't even open your mouth,. It is so frustrating. just hang in there and keep fighting and checking into things. my concern is tht there may be a wrong diagnosis. I get frustrated because I had 2 EEG's . One came out saying I had true seizures and one came out saying pseudo. I have epilepsy running in my family and MS aside from my husband having it. so I am meeting with the neurologist again.
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