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selmaS
"I'll Have Another" WINS Again, on to Belmont for the Triple Crown!!!
About Me: Female, Allentown, PA, member since Sep 2008
diagnosed with Chiari malformation and cervical spinal stinosis-Had my PFD for chiari May 28, 2009.
I also went thru early menopause, looking for any links to what is goi ... [More] ng on now.In 2001 was treated for tarsel tunnel and raynauds.All my life I've struggled with headaches, nausea, loss of balance. I am always cold, and until recently did not sweat and did not mind the heat. Now I feel very uncomfortable and other symptoms feel to be compounded by the heat. And I have constant buzzing and ringing in my ears that sometimes also feels like an ice pick being jammmed into my ear. I am searching for answers.
I have some new dx to add....I was dx with tethered cord, scoliosis. I am looking forward to seeing the drs at TCI in NYC.UPDATE: Drs at TCI have added to my list of conditions....cranial instability, and Ehlers Danlos syndrome.I was told I am a surgical candidate for both my Chiari and TC and that I do have a CSF blockage - TC surgery on hold at this time.
SC CHIARI WALK INFO-http://laurieyeh.blogspot.com/
2011- http://www.northshorelij.com/NSLIJ/Nationally+Recognized+Neurosurgeon+Supports+Chiari+Institute
SSID info-
http://www.ssdrc.com/ssd-chiari.html
PILLOW-
http://www.alltimemedical.com/product.html?product_id=8831&utm_medium=cse&utm_source=shopping&utm_term=8831-19619&atmrid=12&shopping
EXPLOSION LINKS-http://www.mcall.com/news/local/explosion/
http://www.aolnews.com/2011/02/10/gas-explosion-destroys-homes-in-allentown-pennsylvania/?ncid=webmail
Bragging- DD was on Sesame Street here r the links-
http://www.gawkk.com/sesame-street-ballet-with-ellen-degeneres-2/discuss
http://www.mefeedia.com/video/14280968
Adding some more bragging here my DD was in a magazine article and I wanted to share : )
http://www.dance-teacher.com/
http://www.facebook.com/album.php?aid=2039663&id=56601218&ref=mf
Also here is my DD's wedding web site
http://weddings.theknot.com/pwp/pwp2/view/MemberPage.aspx?coupleid=6616715377053552&pid=605586
Just learned that The Hungry Ghosts (which Angie my DD,her friend Judy one of the profs from NYU Deborah were in) opened the same day DD got married! Go see it!
October 3 at 3:22pm · U do have to go to NYC to see this movie tho : )
http://www.facebook.com/video/video.php?v=985295951908 entrance dance
http://www.facebook.com/video/video.php?v=985299454888 finale dance
Chiari related deaths links:
http://www.dailymail.co.uk/news/article-1293996/JLS-songwriters-wife-died-agonising-headaches-blamed- pregnancy.html- Sally
http://www.facebook.com/note.php?note_id=150011935042304&id=156342044378389 - Asthyn
http://brainintheneck.blogspot.com/2010/05/personal-stories-on-becoming-member-of_19.html#more - Clint
http://findarticles.com/p/articles/mi_qn4188/is_20091013/ai_n39261035/ - Kelly Morrill
http://www.reumatologia-dr-bravo.cl/para%20medicos/crit%20y%20diag/DIAGCRITJHS.htm
http://wwwchg.duhs.duke.edu/diseases/pdfs/Chiari_Newsletter_2012.pdf
http://www.medhelp.org/posts/Chiari-Malformation/Chiari-Related-Death/show/1176509- Garion
List of Chiarians that have passed-
Kelly Morrill
Garian Barber
Clinton Botha
Ashtyn Jeanne Mulherin
Sally Meehan
Michelle Marler McCollum
Shannon Terry
Janet Walters
Becky Hulce Harns
Heather Andrews
Bryce Avery
*********************************************
CHIARI WALK Charleston, SC- Date changed will update as soon as we have a new one- use link to make a donation or participate- https://sna.etapestry.com/fundraiser/AmericanSyringomyeliaAllianc/Summerville2012/aboutEvent.do
If making a donation or know of those that would like to donate, please use the above link and use the name Laurie Yeh as the person's team to get credit, mention Selma and MedHelp.
I am also very happy to serve as Community Leader in the Chiari,GERD and Spinal Cord Conditions/Disorders forums. We have such well informed and caring people on the boards. [Less]
I also went thru early menopause, looking for any links to what is goi ... [More] ng on now.In 2001 was treated for tarsel tunnel and raynauds.All my life I've struggled with headaches, nausea, loss of balance. I am always cold, and until recently did not sweat and did not mind the heat. Now I feel very uncomfortable and other symptoms feel to be compounded by the heat. And I have constant buzzing and ringing in my ears that sometimes also feels like an ice pick being jammmed into my ear. I am searching for answers.
I have some new dx to add....I was dx with tethered cord, scoliosis. I am looking forward to seeing the drs at TCI in NYC.UPDATE: Drs at TCI have added to my list of conditions....cranial instability, and Ehlers Danlos syndrome.I was told I am a surgical candidate for both my Chiari and TC and that I do have a CSF blockage - TC surgery on hold at this time.
SC CHIARI WALK INFO-http://laurieyeh.blogspot.com/
2011- http://www.northshorelij.com/NSLIJ/Nationally+Recognized+Neurosurgeon+Supports+Chiari+Institute
SSID info-
http://www.ssdrc.com/ssd-chiari.html
PILLOW-
http://www.alltimemedical.com/product.html?product_id=8831&utm_medium=cse&utm_source=shopping&utm_term=8831-19619&atmrid=12&shopping
EXPLOSION LINKS-http://www.mcall.com/news/local/explosion/
http://www.aolnews.com/2011/02/10/gas-explosion-destroys-homes-in-allentown-pennsylvania/?ncid=webmail
Bragging- DD was on Sesame Street here r the links-
http://www.gawkk.com/sesame-street-ballet-with-ellen-degeneres-2/discuss
http://www.mefeedia.com/video/14280968
Adding some more bragging here my DD was in a magazine article and I wanted to share : )
http://www.dance-teacher.com/
http://www.facebook.com/album.php?aid=2039663&id=56601218&ref=mf
Also here is my DD's wedding web site
http://weddings.theknot.com/pwp/pwp2/view/MemberPage.aspx?coupleid=6616715377053552&pid=605586
Just learned that The Hungry Ghosts (which Angie my DD,her friend Judy one of the profs from NYU Deborah were in) opened the same day DD got married! Go see it!
October 3 at 3:22pm · U do have to go to NYC to see this movie tho : )
http://www.facebook.com/video/video.php?v=985295951908 entrance dance
http://www.facebook.com/video/video.php?v=985299454888 finale dance
Chiari related deaths links:
http://www.dailymail.co.uk/news/article-1293996/JLS-songwriters-wife-died-agonising-headaches-blamed- pregnancy.html- Sally
http://www.facebook.com/note.php?note_id=150011935042304&id=156342044378389 - Asthyn
http://brainintheneck.blogspot.com/2010/05/personal-stories-on-becoming-member-of_19.html#more - Clint
http://findarticles.com/p/articles/mi_qn4188/is_20091013/ai_n39261035/ - Kelly Morrill
http://www.reumatologia-dr-bravo.cl/para%20medicos/crit%20y%20diag/DIAGCRITJHS.htm
http://wwwchg.duhs.duke.edu/diseases/pdfs/Chiari_Newsletter_2012.pdf
http://www.medhelp.org/posts/Chiari-Malformation/Chiari-Related-Death/show/1176509- Garion
List of Chiarians that have passed-
Kelly Morrill
Garian Barber
Clinton Botha
Ashtyn Jeanne Mulherin
Sally Meehan
Michelle Marler McCollum
Shannon Terry
Janet Walters
Becky Hulce Harns
Heather Andrews
Bryce Avery
*********************************************
CHIARI WALK Charleston, SC- Date changed will update as soon as we have a new one- use link to make a donation or participate- https://sna.etapestry.com/fundraiser/AmericanSyringomyeliaAllianc/Summerville2012/aboutEvent.do
If making a donation or know of those that would like to donate, please use the above link and use the name Laurie Yeh as the person's team to get credit, mention Selma and MedHelp.
I am also very happy to serve as Community Leader in the Chiari,GERD and Spinal Cord Conditions/Disorders forums. We have such well informed and caring people on the boards. [Less]
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10 hours in the
Chiari Malformation Community
Yes, Chiari is congenital, meaning we had it from birth, and many of us had symptoms all our lives, but after a fall ...
14 hours in the
Chiari Malformation Community
All I want to suggest is, do not think the worst...since u r the first to have both..... miracles still do happen.
14 hours in the
Chiari Malformation Community
May I ask, have ur Drs had a patient with both conditions b4 to know that is a fact? What I am getting at is, that ma...
SYRINX SHUNTS
by John Jane Jr., MD
WHAT ARE THE DIFFERENT TYPES OF SYRINX SHUNTING PROCEDURES?
In general, a “shunt” is any procedure that diverts fluid from one sp...
This is a journal entry to tell what all I went thru concerning my recent decompression surgery May 28th,2009.
The surgery was originally set for the 27th and it was fo...
well, I was right...I knew that, but it was great to hear the Dr didn't know he should have ordered an MRI of my thorasic spine not the Xray......duh.....sorry....so today...
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May 05
thank you, this is a first for me. im not real good at this comp stuff. im sure ill get it figured out though.. thanks again..
May 03
Thanks for welcoming me :) I was just wondering how long it usually takes to get a response to questions (in general?)
Apr 30
Just a quick note to say hi! I love the new header for the chiari community !! It's awesome, and just wanted to let you know <3
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