About Me: Male, 56, Vermilion, OH, member since Jun 2006
Geno 3a. 2x relapser, stage 4 compensated. Biopsy in '05 Stage 2/3 Downgraded to 3/4 with blood markers, etc. VL 850,000. 12 week treat with pegasis and 800 Riba. Developed serious infection and anemia at 11 wks and taken off 1 week early. UND at 12 wks. 6 mos post VL 2
Retreated Fall '06 Pegintron and 1000 Riba. 24 weeks 100% compliant. Anemia treated with procrit. UND at 12 wks and EOT. 6 mos post VL 4 million. Doc ready to treat again fall '07. Planned pegasis and 1000 Riba for 48 wks. Got second opinion from Hepotologist. Downgraded to stage 4/A portal hypertension but compensated. Diagnosed with steatosis as well. (probable nafld) Will up Riba to weight based. Need to get weight down before starting treatment #3. Platelets and WBC still low 12 mos post. Update: Next tox. will predose Riba for 2 weeks, and treat wiith pegasys 180 every 5 days for first 4 weeks then weekly. Riba 1200 throughout. Alinia 500 mg 2x daily for at least first 3 mos. PPC 900 mg x2 daily throughout.
As far as the supplements go on tox:
I WILL take 1 dose NAC/Vitc, PPC, TMG, ALA, Vit D, lactulose and lactobacillus GG in the middle of the day to avoid any obsorption problems with the Riba.
I will NOT take Milk thistle or curcumin or resveratrol or green tea. No anti inflammatories at all.
I will add lactoferrin near EOT. It significantly boosts the immune system, I think it a prudent addition to SOC at the END of treatment. Instead of stopping cold turkey at EOT on the soc drugs (like I did on the last 2 txs'), I plan to taper down and give my own immune system some help coming back online. As soon as I start to taper, I will add the lactoferrin to help. Camel Lactoferrin is 30x stronger than bovine, so I will try that. HR thinks this plan cerrtainly couldn't hurt, and may just help.
(update 3/08) Endoscopy revealed 2 varices (moderately severe non bleeding) in the lower GI tract.
(update 4/15/08) latest bloodwork WBC normal. ALT normal. AST 65. Platelets still low. VL= 3.14 mil.
(update 5/08) Begian tox 3# Made some changes in plan. See journal entry 3rd tox begins.
Supplements as of 1/1/08
a multi vitamin/no iron
1000 mg of Salmon Oil (epa=160 mg / dha=240 mg / omega 3 = 400 mg) x1
500 mg ALA x2 daily
Raw flaxseed/ 1 teaspoon daily
I remember well your list of supplements. I took everyone while waiting to tx. I am so sorry to hear about your sister. She has a good advocate in you. I wish you both the best getting through this. Isobella
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