Just a quick note to say hi! continue.... I hope organizations see our children in a larger perspective, that they have strengths too and could be their legacy; that they are not medical abnormalities or burdens but actually carrying the burden for humankind. And we, their parents, carry them.
Just a quick note to say hi!continue....They have weaknesses, or drawbacks, but they also have strengths. I believe my daughter did not cry at birth because she found no reason to cry. But she was able to open her eyes looking at my direction the moment she heard my voice inside the NICU two hours after birth. And there were five of us inside the room. The others were also speaking as they manually ventilated her.
Just a quick note to say hi! continue....My hypothesis is what they are undergoing is some sort of transitional change in the human genes. I believe it is not a disease, but a process that is randomly being manifested around the world. They are having a "different genetic orders" and not "genetic disorders". I think your daughter also has high tolerance to pain. I believe this is one of their attributes.
Just a quick note to say hi! continue... Her pedia-cardio doctor said she will need a heart surgery by age two. It will cost around $15,000 here. We hope to get some help by that time. Anyway, your daughter looks okay. Parents of children with different genetic orders really have a challenging life As I told Cead in this forum, I think our children are carrying a burden for mankind.
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