halbashes's Profile
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Mood:
halbashes
is happy! My little sister got engaged this morning! On my birthday!
About Me: Female, 25, Burlington - MA, member since Apr 2008
Hello! I'm Hally, and I'm twenty-four years old. I joined MedHelp because I have a chronic illness, and I enjoy communicating with others so that I can stay up-to-date on treatment options. Writing is my passion! I write open source technical documentation. I also
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enjoy technology, video games, disney channel, science fiction, and monkeys! Also too, I'm Christian, and I love Jesus with all my heart!
I have a chronic illness called Dysautonomia, or Autonomic Dysfunction. I am one of the Community Leaders for MedHelp's Dysautonomia and Autonomic Dysfunction Community. For more information about Dysautonomia, and Autonomic Dysfunction please take a look at our health pages at:
http://www.medhelp.org/health_pages/Neurological-Disorders/Autonomic-Dysfunction--Dysautonomia-Index-Page/show/857?cid=196
Explained simply, it is a dysfunction of the autonomic nervous system, which controls the functions of the body that are supposed to be controlled automatically. Some of the symptoms I experience my particular Dysautonomia include: dangerously low blood pressure, sudden blood pressure changes, fainting, nausea, vomiting, headaches, tachycardia, bradycardia, breath holding, decreased respiration, thermoregulatory dysfunction, heat intolerance, lightheadedness, extreme fatigue, weakness, electrolyte abnormalities, disorientation, seizures, joint hypermobility, neuropathy, delayed gastric emptying, bone pain, orthostatic intolerance, etc.
I am currently using a combination of Mestinon/Ritalin/Theo-24 to raise my blood pressure. The Mestinon has also helped my weakness, and gastroparesis symptoms. The Ritalin also helps with my ADHD, PDD-NOS/Autism behaviors. I also take Omega 3 for to improve my behaviors, as well as my fatigue. The Theo-24 also helps with my Asthma, and works as a respiratory stimulant.
I am also taking Toprol-XL and Fluoxetine. Toprol-XL helps to counteract adrenaline sensitivity, and is required for my borderline Long QT Syndrome. Fluoxetine is also off-label for Dysautonomia, and helps to eliminate some of the anxiety associated with having a chronic illness. I also take prescription liquid potassium for my LQTS.
I take Zonegran for seizures, and severe headaches. Symbicort, Guaifenesin, and Qvar for Asthma. Zofran, and Nauzene for my constant nausea and vomiting. I use Prednisone, and Xopenex on the as-needed bases for my Asthma. I take B-Complex, C Vitamins, and a Multivitamin. I also have Supplemental Oxygen for my Dysautonomia, and Asthma.
I am now in the process of being tested for a Mitochondrial disease. For that I've started CoQ10, and Acetyl-L-Carnitine. [Less]
I have a chronic illness called Dysautonomia, or Autonomic Dysfunction. I am one of the Community Leaders for MedHelp's Dysautonomia and Autonomic Dysfunction Community. For more information about Dysautonomia, and Autonomic Dysfunction please take a look at our health pages at:
http://www.medhelp.org/health_pages/Neurological-Disorders/Autonomic-Dysfunction--Dysautonomia-Index-Page/show/857?cid=196
Explained simply, it is a dysfunction of the autonomic nervous system, which controls the functions of the body that are supposed to be controlled automatically. Some of the symptoms I experience my particular Dysautonomia include: dangerously low blood pressure, sudden blood pressure changes, fainting, nausea, vomiting, headaches, tachycardia, bradycardia, breath holding, decreased respiration, thermoregulatory dysfunction, heat intolerance, lightheadedness, extreme fatigue, weakness, electrolyte abnormalities, disorientation, seizures, joint hypermobility, neuropathy, delayed gastric emptying, bone pain, orthostatic intolerance, etc.
I am currently using a combination of Mestinon/Ritalin/Theo-24 to raise my blood pressure. The Mestinon has also helped my weakness, and gastroparesis symptoms. The Ritalin also helps with my ADHD, PDD-NOS/Autism behaviors. I also take Omega 3 for to improve my behaviors, as well as my fatigue. The Theo-24 also helps with my Asthma, and works as a respiratory stimulant.
I am also taking Toprol-XL and Fluoxetine. Toprol-XL helps to counteract adrenaline sensitivity, and is required for my borderline Long QT Syndrome. Fluoxetine is also off-label for Dysautonomia, and helps to eliminate some of the anxiety associated with having a chronic illness. I also take prescription liquid potassium for my LQTS.
I take Zonegran for seizures, and severe headaches. Symbicort, Guaifenesin, and Qvar for Asthma. Zofran, and Nauzene for my constant nausea and vomiting. I use Prednisone, and Xopenex on the as-needed bases for my Asthma. I take B-Complex, C Vitamins, and a Multivitamin. I also have Supplemental Oxygen for my Dysautonomia, and Asthma.
I am now in the process of being tested for a Mitochondrial disease. For that I've started CoQ10, and Acetyl-L-Carnitine. [Less]
Nov 10, 2009 08:47PM in the
Dysautonomia (Autonomic Dysfunction) Community
Nov 10, 2009 08:44PM in the
Dysautonomia (Autonomic Dysfunction) Community
Good luck with the testing. Please let us know how everything goes on Thursday.
Nov 10, 2009 08:40PM in the
Dysautonomia (Autonomic Dysfunction) Community
Mood Tracker Stats
Happy Days:
2
Unhappy Days:
1
| Average Mood | |||
|---|---|---|---|
| 7d | 30d | 90d | |
| Mood | Okay | Okay | |
I have so much missed my friends here! So sorry I've been away for so long! I've been sick, and while I'm still not feeling much better I am definitely going to try to p...
I'm thinking of researching electronic thermometers that store multiple readings daily... If anyone knows of an affordable one, please let me know! :)
I did stop usin...
I had changed brands of Zonegran. Unfortunately, I don't think this brand is working very well. I think I've just entered a headache cycle. (It seemed to be triggered b...
Nov 12
Happy Birthday Hally!!!!! :) I hope it is wonderful and full of happiness!!!!!! :) :) :) :)
No recent data
No Tickers
BP Tracker Stats
| Blood Pressure | |||
|---|---|---|---|
| 7d | 30d | 90d | |
| Avg | 92/62 | 94/57 | |
| Min | 92/62 | 89/48 | |
| Max | 92/62 | 100/62 | |
| Pulse | |||
|---|---|---|---|
| 7d | 30d | 90d | |
| Avg | 88 | 67 | |
| Min | 88 | 52 | |
| Max | 88 | 88 | |
Status:
Normal
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