About Me: Female, 29, Grandview - MO, member since Jul 2009
I am a mother of a 5 yr old beautiful little girl who was diagnosis with infantile spasms at 3 months. Within the last two years we have changed medications twice and her seizures has went from uncontrolled to control and uncontrolled again. Currently we are dealing wit
...
[More]h muscle weakness which resulted in her getting a tracheotomy and a G-Tube with NO underlying diagnosis.
[Less]