MedHelp - Medical Information, Forums and Communities

Leave a Note | Send Message |

Report

Mar 05

Thinking of you.

Chrystalheart

07/10

Wow. It seems like everything they do to diagnose it is crap. Fine.. if you happen to fit in the definition. But, like with the brain shrinkage.. I was told they can tell if your brain is shrinking just by looking at the mri and finding space where there shouldn't be space. But obviously that's not true if they had to see yours side by side to see the difference. It's hard to have faith in this diagnostic system. So many of the tests seem to rely on someone's subjective opinion. It's amazing anyone ever gets a proper diagnosis this way. How long did it take you from onset to diagnosis to have them finally figure it out? I know that you were getting tests back in 2007.. but when did the problems start? I think it's really great that your son is buying a house for both of you!

Chrystalheart

07/10

Well, poo. just lost the note I wrote! I am so sorry to hear that it's PPMS. I'm glad that you have a DX though. Just the validation alone.. and knowing. You can plan and get disability.. finally. Can't they use any of the new MS drugs to help slow it down? I'm ok.. started lyrica which has helped tremendously. Just went through another set of MRIs, a neuropscy exam, and am waiting on the VEP and a lyme specialist appt. Tired of hearing how i'm passing all of the tests. I mean.. yay, I guess.. ? But I've been doing a lot better this year overall which makes it hard to stick with it. How are you doing with your DX?

Chrystalheart

07/10

Hey, it replaced my note! That's what I get for clicking on a snazzy cute picture. .. What I *was* saying.. is that I hope you're doing ok.. I've been thinking about you. Hope you are finding what joy you can. Jen

The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.

This site complies with the HONcode standard for trustworthy health information: verify here.



	Delete Also delete data entered using this tracker Ok Cancel



	Remove Also delete data imported from this device? Ok Cancel