I have a link for you too, on your post you mentioned you had some pain in your neck and head and that reminded me of something I read recently on an inner ear disorders board (again with that crazy research!)
Don’t know if you have already looked into Chiari malformation, but one of its key symptoms is pain/pressure at the base of the skull , besides all the other visual disturbances we have. Good luck with everything!! I wish you the best and hopefully we will get over this or improve somewhat :) Keep in touch!
It’s crazy how so many of us just do our own intense research and diagnose ourselves since doctors don’t seem to know or care so much :( I think I may not have labyrinthitis, but something else like MAV (Migraine Associated Vertigo) or Vestibular Neuronitis. Since my symptoms seem to fit them better.
This has all been really difficult for me, I’m only 23 and can’t help but think that I’ll have this for the rest of my life. No one really understands what we go through since it’s not such a common condition or set of symptoms.
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