About Me: Female, 36, rotorua, New Zealand, member since Oct 2009
i love to dance, opened my own studio, im also a wedding designer, i have 3 children, been married twice,
Im abit unsure what life will hold for me so this is my favouri
[More]te quote i made a few years ago
"Its time to swim out of water before you sink and drown, float above the waves and see the warm glowing sun and you will dry and walk away"
Just a quick note to say hi! I saw your post about people not understanding how you feel because you look fine. Yesterday, I was reading old threads, and found a suggestion to google the Spoon Theory. It's by Christine Miserandino who has lupus. It is WONDERFUL. You should read it, print it and have your family read it!
are there many chiarians or support in NZ?
I like this site but sometimes it makes me realize I have more symptoms than i was aware of.
still, great to have people with similar experiences that don't think you're nuts.
came over for a 6 mth "working holiday" in 91 and been here ever since. Yes, i miss home but after all these years am getting used to it. My texan husband will not move to NZ so with two kids it's now an impossible dream. I do come back about once a year. Missed last year due to chiari surgery. I do love Austin. Summer heat is wicked - 100 degrees for 3 months straight.
If u have good med. insurance the US is a great place to be sick or get tests done (luckily we do)
I had lots of complications with surgery but still very glad i did it. some symptoms are returning but still way better than previously. did I see you were a dancer? does exercise make you feel worse?
I had to give up jogging cos it was making me much worse (even tho. all experts said it wouldn't be a problem)
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