Hi nervousnelly77, I thought i was the only person in the world this has happened to.. ive had long term oral thrush and oral hairy leukoplakia and i was convinced it was hiv related but i was too scared to get tested.. I finally had enough and got tested and i was shocked that it came out negative.. i had them retest.. negative again.... Please let me know if any cause has been determined in your case as i am trying to figure out what could be possibly causing this with you!