About Me: Female, Fishers, IN, member since Oct 2009
I was diagnosed in 1998 with CM1. The doctors have treated this as an irrelevant diagnosis for all of these years, yet I have had increasing symptoms over this time. Now I have been on disability Since April 2008. I just started looking into my health history, found
[More] the old Chiari diagnosis, and began to look into it... I was shocked and appalled at what I was reading! It turns out that what the doctors had tried to convince me "was all in my head" - WAS!!! Of the long list of symptoms (60+), I am able to check off more than 3/4! It's a shame that doctors apparently don't know how to use the internet... and more a shame that they don't care enough about their patients to do research into things they don't know about or understand. ARGH!
I noticed in one of your answers to someones question in the chiari blog that you saw Dr. Di, at Cleveland Clinic is that true? the reason i am asking as i was concidering seeing him. i have Chari Malformation I and have had one decompression but my spinal fluid is being blocked again.
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