About Me: Female, 46, Layton , UT, member since Oct 2009
I started getting gran mals at 14 for no reason in my sleep. At 27 I started getting daytime partial complex, focal point, speech arrest seizures. I have always had headaches since 10. (Not migraines.) Migraines began around age 35 after TIA on my right side ( a smal
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[More]l one which I thought was just another seizure). At the same time, my neuro found a small pineal cyst and sd not to worry about it. I'm supposed to have yearly MRI's and Angorams as my veins are convulted he said. I skipped a couple of years and my neuro sd on the new MRI that the cyst has tripled in size and to never, never skip a year, but still not concerned as it is inoperable because of where it is located. In the last 3 years I have had almost daily migraines to which I am now on disability on. I have been a Paralegal for 20 years and I'm only 43 and depressed with chronic pain. I have been to Dr.s and Dr.s and most don't believe that I have so many migraines as I say. One sent me to a heart Dr. and they found a hole in my heart and did a PFO closure. Though it takes some migraines away from patients, it did not for me, even though it saved me from a dibilatiting stroke. I also have had a total hysterectomy at the suggestion of my neuro, this too did not help with my migraines. But it added other emotional problems as I cannot take estrogen to help with mood changes or hot flashes as I had a minor TIA. I feel totally screwed!
When the pain gets so bad I just want to end it. I MEAN END IT FOREVER!!!
I have never posted anything about myself of asked for help on-line, but I'm desparate for suggestions.