About your spaciness - I have it too!! Lyme can cause that. Lyme can go into Alzheimer!!! Please, please, go to a Lyme-literate doctor. Try the antibiotic treatment!! Also IV vitamin C can help. Attend your local Lyme support meetings. You'll learn lots. If you try the Lyme treatment and nothing changes, then you'll have ruled out Lyme. But if you have Lyme and don't treat it, you'll slowly die!!! Contact your local Lyme group TODAY!!! Please, do it! I care about you!! Do it!!!
I got some more lupus tests done yesterday. I was only in "the cooker" for 4 minutes this time - after tanning felt like throwing up. While tanning, had paresthesias, thumb twitching, and later a facial rash. Hope the lupus tests are positive! Would rather have lupus than ALS or Lyme. Then I'd know to just stay out of the UV rays. I have CPAP (mine is like a BiPAP) for sleep apnea. My low sats were recorded WHILE I was using my nighttime breathing support. Going down the tubes! Hope you're making some progress! More later.
Hey, Torikat! I can't believe what you have had to endure! Continuing numbness and no response from neuro. Hello??? Anyone home in that neuro's brain?? I'm also having numbness, but mainly at night in arms and hands. My ANA was negative (but didn't get UVB that day due to my "flare") but my sed rate was high for a change. Had pulse ox done while using CPAP at night - O2 sats were in the 70s and 80s - never 90s. Sooooo, now I'm on oxygen at night with my CPAP. Still think I have ALS. To get more info on local docs and sym;ptoms, you should be attending your local support groups in Lupus, MS, and Lyme - yes, Lyme. It can mimick many neuro conditions and it is very widespread! Lyme can cause numbness! Lyme, untreated, kills. See the DVD "Under Our Skin" for better understanding.
I hope your visit with your neuro went well today. You have so many progressing symptoms!! I read that foot drop in lupus can sometimes be reversed with steroids!! I tanned yesterday for less time and tolerated it better. But still had symptoms while tanning - this time felt numbness in my cheeks while tanning. Weird! Now my right foot is also feeling weaker. My forearm muscle mass loss is more prominent - my bones are really sticking out! No MD seems to care about it! Can we please get some answers?????
Hugs from WAF!
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