About Me: Female, 35, Milwaukee, WI, member since Nov 2009
I was recently diagnosed with Chiari Malformation Type 1 with a 6-8 mm herniation. I am in the process of finding a Chiari Specialist that will accept me and help me with the issues at hand. The journey has been long and is very trying at times, but I know I will get an
neurosurgeons come in 3 types, #1. The type that thinks you should always and only keep allegiance to your original DR, they don't like you "shopping around" to make sure you are comfortable with the decision of that first DR. #2. The type that don't give a hoot about who you went to before, they look at you as a clean slate to work on, they welcome the opportunity to try to help & #3. The type that found a money niche and will do more than you really need to make more money, and by doing more than you need, maybe you will never have a complaint since they are treating anything possible from the start.
I found DR. Heffez in WI. & DR. Bejjani in PA to be #2 :) Johns Hopkins, Mayo Clinic #1, and The Chiari Institue in NY a #3. But those are my impressions. I work from my gut
Just a quick note to say hi! HEY! sorry we missed you while in wi. don't know what happened, but sorry just the same. so i take it you did not follow thru with your surgery? if you are still considering it, i would be happy to answer any questions you might have. or if it's easier, you can always call me. you have the number. would love to hear from you and how you are doing!
Just a quick note to say hi! and if you'd like to come for a visit tomorrow or sometime tuesday evening, we would love to meet with you and give you a one on one account of our experiences. i will pm you my phone number now...
we both will be leaving on wed. to go home!
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