I am looking for support, and others experiences with tonsillar ectopia and such. I don't have a good doctor or NS that explained everything to me,,,and I"m having headaches that just started a week ago,,,and don't know why.. I had an MRI of the brain on Sept 2nd. I am
[More] on holidays and don't know whether I shold be worried or not. Looking for help.......
Hi Achyten. Wow, it's so weird to find someone out there who has all the same issues as me. I really thought for a while that I was going crazy. I feel as if everyone thinks that I am a hypochondriac! I just want to feel good for a little while.....Hopefully things will turn around for both of us!
Just a quick note to say hi!...well I did not think it was me either...but do get checked...many of the symptoms...the being cold is EDS....and the random pains can be EDS....but again, do not rule it out, get checked.
But u do sound like u have chiari symptoms.
Just a quick note to say hi!...I was also told I had fibro and this past spring was DX'd with Ehlers-Danlos...so do make sure u were not given a dx bcuz they had no idea what was causing ur pain.
No worries we r here to help when we can and most of all listen : )
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