Hi there, hope you are keeping better now..Ive seen the new neurologist who has confirmed I have had Transverse Myelitis but he is wanting to do more indepth MRI imagaing to rule in or out MS. The last neuro dismissed MS but this neuro doesnt know how he could have done this on such poor quality MRI. Weird hu?! Keep in touch Heather x
Just a quick note to say hi!
Hi, I saw something you wrote about foot pain and you mentioned some of your symptoms. Have you ruled out lyme disease? I just ask because they are finding links between ms and lyme. Since steroids are usually used with ms, it os really bad when you have lyme, it sort of feeds it. Anyways I didn't know what was wrong with me for years so I know how frustrating no diagnosis can be. Hope things are better.
Hi there. Just finished 3rd day IV 1g Methyl=Pred. Been up and down through out the treatment with hot flushes, chest tightness, metalic taste, tireness. Hoping now that it is now finished I can let my body settle back into normal and see how I am . Hoping it will allow me to get back to normal and increase my leg strength.
Hope you are well now. Best wishes Heather
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