Hello, I am a 57 yr. old female who has just been disgnosed with progressive MS. it has been hard for about 7
years for me and my family. I love this forum because you
[More] get the encouragement and support that helps ALOT. I love to do gardening and outside things, but have had to slow way down now. Can hardly wait till spring though,
I have been married 36yrs. and have 2 children and 6 grandchildren...LOL ..and more to come.....
I would hope that the Dr's will listen to us, as who better to know our own bodies, but US !!! extremely important to make our DR'S listen to us, and to pay attention. RIP my friend Mary, you will be missed ..:)
Hi doll! I do live in NB and it has been hot and humid for quite a bit but I'm doing OK.
Rebif was good to me but I usually had a mild fever the morning after despite taking acetaminophen before the shot. My injection sites used to take a few days to get red and that lasted a few days too. I was very tired but that may not have been the Rebif so much as the MS. :-)
I heard this week that Plegridy was now available in Canada. It will be a while for the provincial plans to approve it but when I switched to Tecfidera it was not in the drug plans either and Biogen gave me the drug for free until it was covered.
Just a quick note to say hi! Candy, I am doing well. This summer has been okay. I swim for an hour each day even though it makes me tired. I am also walking. We are going to Europe next month so I want to be in shape. My feet are my biggest MS problem. They hurt all the time.
I am sorry about your sad day. That is the worst ever. Hang in there.
Hi doll! Big bear hug right back to you! :-)
The summer is getting downright hot here in NB.
I am so sorry Copaxone is still giving you issues. I never tried it but used Rebif for a year if you think that switch might be coming.
Thank you for your encouraging words. I will wait for a while .. but yes, if I must, I will pursue another opinion. My doctor just looked at me when I suggested I was done, and said, "No, you are not." How are things with you?
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