About Me: Female, 36, Roanoke, VA, member since Jan 2006
I am the grandmother of a 28 year old granddaughter that became blind two years ago of an very rare condition (or at least very few doctors are knowledgable ot this condition), pseudotumor cerebri also know as Intercrainal Hypertention. Her optic nerves were totally de
[More]stroyed in the perior of three months and it is not reversable according to our doctors here in Virginia. Please keep me informed of any research being done on this condition and PLEASE SPREAD THE WORD TO DOCTORS TREATING PEOPLE WITH THE ONCOMING CONDITIONS OF THIS IH SO THEY MAY GET TO AN OPTOMOLOGIST SOONER. It would have saved her eyesite if the palpidema had been caught earlier. She had optic nerve fenestration done but it was too late to save her sight. Please help this family in our effort to inform doctors of the signs of this desease that will eventually end up in blindness if not caught quick enough. (She was told it was migraine headaches, sinus infection, wisdom teeth (even though her sight had become blurry and distorted. I then took her to my optomologist that immediately put her in the hospital here in Roanoke, VA ... and then sent to University of Virginia of Hospital to Dr. Newman (a very noted doctor on this condition). But in spite of his efforts, it was simply just too late and there was nothing he could do to restore her sight. PLEASE JOIN ME IN THIS EFFORT TO GET THE INFORMATION OUT TO DOCTORS AND THE IMPORTANCE OF EARLY RECOGNITION OF IH AND A POSSIBLE INTERVENTION IN ORDER TO SAVE HER EYESIGHT. ANY HELP WOULD BE SO VERY APPRECIATED.
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