hi Rachelmek,
I too have PKD and have known about it for 10 years and am still doing fairly well. My kidney function is about 50% still. So, just one small correction. Please be careful about referring to PKD as fatal. It's more often not fatal. Chronic yes...but definitely not fatal except in extreme cases. have a great day. Lynda
Just a quick note to say hi! i am sorry to here about your kidney disease.i would like to here more of your story,i have had a few kidney issues in the past.can i ask how old you are?