My son was born April 4, 2009 at 34 weeks. He was healthy, but got NEC at 3 days old. He now has short bowel syndrome after being left with 15-20 cm left of his small intestine, no IC valve, no appendix and a quarter of large bowel removed.Aidyn had an jejunostomy until
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[More] September, when his remaining intestestines were succesfully reattached. After the ostomy takedown, he had 7 - 8 stools a day and a few weeks later went down to 3 - 4 stools a day. He is on TPN 6 days a week, 16 hours a day with Omegaven lipids. Slowly weaning. He takes all other food by mouth: Elecare 20 and starting solids (rice cereal, some baby foods). He is currently clearing his first central line infection (Feb 2010).
With the Boston CAIR (Center for Advanced Intestinal Rehabilitation) clinic managing Aidyn's SBS, he does not have a g-tube knowing it will mean our son will be on TPN longer than most kids weaning off. We have been approached by a GI doctor in Arizona while in the hospital about using the g-tube to wean off, but we don't want to introduce any more foriegn objects into his body. We want to follow his cues for increasing oral feeds because he's growing well with this approach.
If anyone has suggestions about what to eat and firm up stools, that would be great! Also, feel free to ask me question :)
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