About Me: Female, 57, Jacobson, MN, member since Mar 2010
I was a hardworking and successful before I was poisoned with carbon monoxide, had a stroke and ended up with Lupus, Autoimmune Hepatitis, Mixed Connective Tissue Disease, Arthritis and Hypothyroid Disease. For a dozen years I went to the doctors trying to get help and
[More] they kept plying me with antidepressants, and I believed I was a whiner or fake. Even though I couldn't stand, I couldn't think, I couldn't work, I couldn't function; I thought it was all in my head. That I was making myself sick. Until they took my gall bladder out and they found I had cirrhosis. They took color pictures of a liver covered in nodules. The surgeon declared I was an alcoholic, but after over 100 vials of blood and so many tests they learned it was autoimmune. I was exposed to carbon monoxide for several winters and almost died but they would not say it was from being poisoned. I lay on the office floor day after day that last winter thinking it was funny they didn't know that I only got up to answer the phone. I vomited day after day, passed out behind the wheel driving home day after day, stopped recognizing forms and how to do my job. No one would listen. In 2006 my liver panels were such that they shot radiated MRI's to look for bone cancer. They told me I had an enlarged liver, patted me on the head and sent me home. No one told me how to eat or what to do. I could have reversed the damage. Now after going to the Mayo Clinic this summer and having the liver transplant doctor yell at me and tell me I was never going to get better, I am fighting every day to make a liar of her. The reason she treated me such is that I allowed myself to become emotional in front of her. She told me that I needed compassion and told me to my face that I should take antidepressants and that they would not hurt my liver. After so many years of this, I knew that she would never take me seriously again. Never "really" look at my illness. I should have had an advocate with me so that I didn't allow myself to become tearful. The reason the Mayo doctor treated me like she did is that my liver doctor kept saying I only had fibrosis not cirrhosis. The gall bladder surgeon was experienced and I did not doubt his word. The liver doctor must have made it sound like I would not accept that I was sick with cirrhosis to cover her ***. So the Mayo doctor thought she had to pound it into my head and be aggressive about it. I let her. After all the tests, xrays and MRI's she confirmed that I had cirrhosis. All I ever wanted was to hear the truth. I'm angry that they would listen to me year after year and that I am this sick now, but at least I "know" what is what. I have a wonderful primary doctor now that doesn't push pills. He put me on a Paleo diet with a few adjustments, and my labs are almost normal now. I have more good days now then I did before, and am bent on healing myself. If my antibodies can become confused and attack my organs, tissues and brain; I want to try to unconfuse them. If I am successful I want to be able to share my success with the world. For right now baby steps, fresh local food and honey, and learning to love myself are my top priorities. God bless all of you, who have been kept in the dark and want to be well.
Hi there, I saw one of your posts and was wondering if you are seeing a liver specialist a Hepatologist, you probably are, I just wanted to mention because I did not know so kept seeing my GP
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