About Me: Female, 32, Ste-Marie-de-Kent, NB, member since Mar 2010
At 20 weeks of gestation we got recaled for our ultrasound because they had seen problems with our child. When we got there they discovered that he had possibly Meckel-Gruber syndrome. We were devastated as they said he would probably die in utero and if he did get to t
[More]erm he would die shortly after. They suggested abortion. We decided to keep our child and give him the chance to die on his own. They did all kind of genetic research and it all lead to the same conclusion that he would die soon. The pregnancy went well despite all that and at 37 weeks I gave birth to a breached child that we named Jacob. He lived for 16 minutes, the best minutes of our lives. He had all the symptoms of a Meckel-Gruber child but in our eyes he was the most beautiful baby ever. We do not regret our decision to let him live.
I too had a child diagnosed with Meckel-Gruber. During a routine 21wk Ultrasound, hoping to find out her sex, we were told she had passed. After waiting a full 5 days to be induced, I delivered a beautiful angel we named Laylah. The most difficult part was leaving the hospoitalexplaining to our 3 other children at home that their sister was needed in heaven and she wouldn't be coming home. We are now expecting another and I am completely overcome with fear. We are telling no one, until all the tests are back.
I hate to say it, but I was very jealous of the 16 minutes you got to spend with your precious Jacob. You and your family are in my thoughts and prayers.
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