About Me: Female, 22, Northampton, United Kingdom, member since Apr 2010
Not much to say, Im an ordinary (Kind of) 17 year old girl studying A-levels at Kingsthorpe college. Im a tap dancer and have been for about 9 years but I am struggling to continue it at the moment. The reason for this is because I have trigeminal neuralgia, and its tri
[More]ggered mainly by heat so exercise increases my body temp which in turn triggers an attack. My neuralgia is in the opthalmic and mixillary branch of the nerve and is bilateral (meaning its on both sides of my face). Im currently only on 100mg of carbamazepine a day due to strong side effects, and this doesnt help with the pain at all. I dont know whats causing this neuralgia yet, but the signs are not good. For a start in only 17, people normally get this in thier 50's, having the neuralgia in the opthalmic branch is rare but its even rarer for it to be bilateral, especially at my age, plus the fact its triggered by heat is slightly unusual and normally an indicator of MS (heat worsens MS symptoms), only one person in my family has MS and thats my great aunt.
That doesnt sound good. Can he not try another med or refer you to a neurologist?
I had no relief with that drug so im now on 1800mg of gabepllin (sp?) which makes me feel drowsy but is helping with pain abit. I had to ask my doc to get refered because i want an mri scan and help from someone who deals with TN. Surely reducing your med is just going to leave you in the pain that you were in before. I'm only knew to this illness so i'm just researching as much as i can. Hope you get some releif soon.
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