About Me: Female, 33, chicago, member since May 2010
I had brain surgery--a left temporal lobectomy--in August 2007 for 13 years of intractable epilepsy (complex partial seizures and secondary generalized seizures) and a brain tumor and have been dealing with chronic pain from the craniotomy ever since. Pain is primarily
[More] across forehead and somewhat on top of head, a type of pressure/squeezing/tight feeling. Gets worse when I look up. I still have some soreness/tightness around scar itself, but that is bearable. Am simply trying to find someone else in similar situation, and ask if they have found any pain centers they recommend, anywhere in the country. I have tried all types of treatments, including acupuncture, medications, and injections and have been to RUSH pain center here in Chicago for three years, but no rip roaring success. Also tried an implantable neurostimulator, but not too successful either. Appreciate suggestions on where to go, places where people have been helped with similar type of pain resulting from craniotomy.
On a little more interesting level, I love WWII props, classical music, history, and philosophy. And a good laugh or two. Were it not for my epilepsy, I would have loved flying as a career. Hoping to get rid of pain/make it more manageable so that I can get life going again--simply miss having a good time, living life to its fullest. Would enjoy being in contact with other individuals who are in a similar boat, or have found answers to their pain issues resulting from a craniotomy. Thanks much--
Hi!I had a craniotomy to remove a tumor on Jan.3,2011.I too am having that horrible tight,squeezing feeling on the side of my head all day long.Haven't talked to the doctor much about it yet,but I will at my next appt.Have you gotten any answers as to what it is?Any info would be great.You can email me at ***@**** you.
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