About Me: Female, 47, Galveston, TX, member since Jun 2010
I am a nurse an contracted Hep C by a needle stick in 89, in 91 I got my tubes untied to have children with my now husband and gave blood for myself,,,which was rejected, and was told it was nothing to worry about I just had non A non B Hepatitis even went to the MD and
[More] called the Infectious Disease Specialist of UTMB.....same " nothing to worry about ". I was worried now about having kids, but they assured me everything was fine. In the meantime I had 2 beautiful kids and after a few years starting experiencing panic attacks, depression and had red palms ( I thought mine just looked like that ) fast forward to 2004 I was having severe gallbladder attacks....they drew blood and the PA came in and said you have Hepatitis C, that's it ! I was blown away! Were my children okay ? My husband....First thing I did was have my kids tested they were fine !....Had my gallbladder taken out and a liver biopsy which showed Grade II Inflammation and Stage I Fibrosis....I didn't know what I was going to do since I did not have health insurance...The hospital covered my gallbladder removal but treatment for Hep C ? I was genotype 1a... I searched for a Clinical Trial which I found and was accepted as an appropriate candidate, My ALT was 148, and my AST was 108, My HCV RNA QT. was 2,515,878, So on 9-26-2005 I started my treatment......I had awful body aches, severe panic attacks, and thought about suicide during one of them. I had no energy, My hair was fally out. I had to takr Procrit shots for anemia.I got really antisocial which is nothing like me, I am a VERY socialable person. I wanted to stay in my room away from everyone. Well finally week 48 arrives ! I thought this is all over now............how wrong I was. Now 2010 and I have extreme fatigue, still having panic attacks, My short term memory ***** and things I want to say don't come out at all right( different words that don't even relate to what I'm talking about) I joke it off.......but it interferes with my work..I want to work and have been working but find it difficult to keep up. I have to have a 2-3 hour nap daily and I go to bed at 10:00.. I have tried EVERYTHING....including going to a Longevity Clinic that cost big bucks just to get my energy back ...nothing has helped so far...Don't really like taking antidepressants and anxiety meds but I cannot stop taking them..I've tried and had severe panic attacks. I don't think I'll ever be like I was and no doctor can tell me I will......they have not done a study of the lifespan of anyone who has had this treatment.
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