About Me: Female, 31, Lincoln, NE, member since Jun 2010
I'm Jen, please let me say how happy I am to have found this site!!! I have Hashimoto's thyroiditis, migraines, acid reflux, bile salt diarrhea, chiari I malfo
[More]rmation.., and they think I may have addison's disease too, but we are holding off on the test for right now..
I like many of you have been told time and time again "You are fine" or "all of your symptoms are related to_______(some other condition(s) you may have". UGH, I am furious with doctors and there lack of compassion and "gut instinct"! I mean how would they feel if it was their child or spouse or parent that kept being told its all in there head when it LITERALLY is(chiari)!
So I have 2 lil gals, they are 4 and 1 and both were born in Oct.. I have a great husband who is loving and caring and supportive (most of the time lol)...
and thats all for right now.. I will come back and update this later...............
"take care, because I care, and knowing is half the battle" unknown
I am sorry I am so long in getting back to you...
I would or was thinking that I would get a reminder that I had notes in so to speak. So, I just checked, nothing was in the inbox.
That is just crap, if you ask me - all the docs have to have this and that lenght and so on, it seems size matters:? what about pains and symptoms, The University in Missouri also has a Chiari Expert or had one She is a lady doctor that is supposed to be really good as well. I do not know if she is still there or not. But, they do specalizd in Chiari as well and research chiari.
Once again, I am so sorry it took me so long, I was wondering what was taking you so long in getting back to me. LOL - so I thought you know just let me check the notes.
Life events do get in the way and we are busy
I am glad that you had a safe trip there and back; I hope by now that you are getting along better with your meds and that it will take the pains away from your body.
I am curious why you did not make contact with Dr. Oro in Colorado it is a lot closer than making that long long drive.
But it is all good that you are seeing an excellent doctor and in good hands.
I was going to see - and send you a note... But then you were on the road & I could not see the use in sending a reply to you.
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