About Me: Male, 52, PERTH, Australia, member since Oct 2010
G'day. Though my nic is DrBoo I am NOT a doctor. Anyway, I have suffered from Chronic Fatigue Syndrome since 1999 and still have this mysterious condition as of October 2010. I am more determined than ever to get answers. Doctors can't help as yet. I find internet - com
[More]munity forums have some of the best advice. In fact, forums are the first place I go to whenever I need to start research on any subject. I have a few irritating health problems, and I am relieved when I read there are others who have similar issues like mine. I am not alone!. Neither are you!
They also suggest I get a medical service dog so I would have a little more freedom and I could be able to be left alone in my own house plus they could train the dog as a emotion support dog so when my depression is getting bad he can help me with that as well so basically I would need a mobility/emotional service dog which I feel in love with the idea and it brought my spirits up thinking of some freedom and maybe some alone time with having to be treated like a 2 year old. My husband is going thru courses so he can be certified by the government so he can be my caretaker and then the government would pay him a certain amount to take care of me. Since he had to quit his job to take care of me and the kids we need all the help we can get and that *****!!!! So how are you doing???
You deserve a big bear hug!Thank you for thinking of me I havent been on here much as well I have been having complications one right after the other thankfully I did find out that it is NOT MS :) I was very very happy to hear that but they do know what is wrong with me and it scares the hell out of me it is called Spasmodic Torticollis Dysotina which there is no cure and since we last spoke I am now homebound I will and can not go out into public I cant walk more then a few feet without my entire body going into a full body muscle spasm and my neck is stuck to my right shoulder. I am terrified to leave the house I am so scared someone is going to make fun of me and I just cant take that I am starting to be in such a deep depression but my doctors are working with me on that.
I hope you are feeling well, I wanted to write more in my last note but didnt have enough space. I am sorry you have had this for so long how have you been dealing with it?? I see you have a new thing going on that started here in October I need to read your profile a little more to find out more on that I hope you know what it is so you can get it under control, not knowing I think is worse then knowing! But I think I have used up alot of your space on here so I hope you feel better really soon, you know how to find me if you would like to write.
Thank you for your words of encouragement I really needed them! I did see my RA and they did a whole round of blood tests on me and gave me some scary news, they are thinking I was either misdiagnosed with Fibro and I have MS or I might have both Or I just love when they throw the OR in there I have the Fibro and it is just causing all this hate and discontent on my body. I have to go see a Nueorologist (I'm sorry I am not the strongest speller) on the 18th of Nov. and they are going to do a MRI to check for lesions on my brain and spinal cord?? Yeah things that mean completely nothing to me I have to go look everything up because I know nothing about it or MS I have heard about it but I dont know what it is all I know is that it is scary. I hope you are doing well I will write more soon..
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