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Mood: scarlet37
is doing fantastic
About Me: Female, 39, a suburb in - PA, member since Jul 2006
TT 12/7/06 ( benign multi-nodular goiter - taken out due to dominant growth several new nodules & hurthle cells present) ... [More]

TSH as of 8/28/07  .35 175mcg levoxyl - heart palps - dizzy spells -severe brain fog - hypoglycemic episodes - extreme anxiety- levoxyl reduced to 150mcg.

TSH as of 10/6/07  2.3  150mcg.levoxyl - TSH as of 1/7/08 2.58 remaining at 150mcg.

2/5/08  officially diagnosed with Narcolepsy - started ritalin

TSH as of 3/18 is .90 ( I feel good at this level), on an alternating dose of 150mcg 5days and 175mcg 2days.
[Less]
Interests: Thyroid Disorders, narcolepsy  
Rash
Nov 08, 2008 05:42PM in the Thyroid Disorders Community
It honestly sounds like a coincidence. Perhaps you are allergic to an ingredient in the hair dye. That's probably why yo...
IM BACK!!!!
Nov 08, 2008 05:24PM in the Thyroid Disorders Community
Welcome Home !! Great to hear your back safe and sound on "home" land! Look forward to see how your doing. ...
not able to sleep associated with CNS damage- need help
Oct 20, 2008 08:15PM in the Sleep Disorders Community
Although your sleep studies have ruled out the usual stuff have you seen the graph copies and the exact results for yours...

Another great night


Nov 14, 2008 12:00AM
Since my doctor increased my dose and I am able to slowly increase it myself I am getting better sleep every week.

Xyrem is working


Nov 06, 2008 12:00AM
I'm doing better than I have in 3 years. Now that I am on Xyrem my symptoms of Narcolepsy are disappearing . It's a wonderful feeling to have the fog lift!

Nite 2 of Xyrem


Oct 17, 2008 12:00AM
Much better night. Nothing unusual. I can't sleep very long though. When I wake up after the dose wears off I go into that immediate REM sleep. It's frustrating after havc...[more]
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Revie
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Revie
Female
Glasgow - United Kingdom
Member since Apr 2008
Mood: Revie tired
Sep 18
Hi,not been online for ages, not sure what test doc ordered but prob was western blood. I'm one hundred percent sure it's lyme that I've got but my doc thinks I'm a hypochondriac and now that the bood tes has come back negative she has written me off. I have written a begging letter to my local hospital ( dr of infectious diseases). Thanks for your help and advise.x
shebear271
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shebear271
Female
CA
Member since Jun 2008
Mood: shebear271 good
Jun 29
Just a quick note to say hi! Hi Scarlet! My daughter has Grave's disease, and I have Narcolepsy AND Epilepsy. BOY, can I relate! I am taking Provigil for the Narcolepsy...it is much gentler (to me) than Ritalin. You might mention it to your doc. I, however, did not have sleep apnea...that might make a diff. I take a pretty strong dose of meds to stay awake, and it still takes me forever to move, so I set my alarm for 4am, take my provigil and go back to sleep. By 6 or 7, usually 6, I am fully awake and ready for the day. I just joined this forum for a weirdness that just started last week...I'm in the Epilepsy forum. I am so happy you discovered your problem. God will help you. Stay tough.
shellsa
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shellsa
Female, 32 years
Auckland - New Zealand
Member since Oct 2007
Mood: shellsa immune systems down with colds again
Journal Entry:   "michelle here i feel right now i was doin..." [Read]
May 22
You deserve a big bear hug! yEAheah yesterday i felt great today i woke really tired partly disturbance from husband i feel weird today i wish thyroxinewould say to me get moving today
shellsa
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shellsa
Female, 32 years
Auckland - New Zealand
Member since Oct 2007
Mood: shellsa immune systems down with colds again
Journal Entry:   "michelle here i feel right now i was doin..." [Read]
May 21
You deserve a big bear hug! yeah i am actrually working on getting my strengh back now
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shellsa
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shellsa
Female, 32 years
Auckland - New Zealand
Member since Oct 2007
Mood: shellsa immune systems down with colds again
Journal Entry:   "michelle here i feel right now i was doin..." [Read]

Female, 32, Auckland - New Zealand
authrjenn
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authrjenn
Female, 58 years
truth or consequences - NM
Member since Nov 2007
Mood: authrjenn peachy Keen
Journal Entry:   "Well its been 2 months since the shooting..." [Read]

Female, 58, truth or consequences - NM
Jessi63
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Jessi63
Female, 30 years
Harrisonburg - VA
Member since Dec 2007
Mood: Jessi63 scared, confused, mad, depressed, frustrated, etc.......
Journal Entry:   "Seems that every anti-depressant I take m..." [Read]

Female, 30, Harrisonburg - VA
jonathan_PTRP
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jonathan_PTRP
Male, 24 years
CEBU - Philippines
Member since Feb 2008
Mood: jonathan_PTRP feeling good after treating patients..
Journal Entry:   "Walking, swimming, cycling, rowing, cross..." [Read]

Male, 24, CEBU - Philippines
Revie
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Revie
Female
Glasgow - United Kingdom
Member since Apr 2008
Mood: Revie tired

Female, Glasgow - United Kingdom
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Just a quick note to say hi!
You deserve a big bear hug!
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