About Me: Female, 38, Schenectady, NY, member since Dec 2010
I am 36yr old and have been diagnosed with Lupus, Fibromyalgia, and Sjogren's Syndrome. Somewhere autonomic neuropathy tied in as well. It has been a long journey getting here and still suffer with symptoms. Looking for anyone who can relate/offer suggestions. Also a mo
[More]ther of a teenager and wanting/wishing to get back to life of a higher quality.
Just a quick note to say hi! Hi Jen. Hope you are doing well. I've had some rough days lately... kinda down. had to put my 91 year old g'pa into assisted living over the weekend, as my 93 yr old g'ma passed away.. He is so lonely and lost. I can't imagine. Make the pain worse it think when you worry and are down. I go to Cleveland clinic this wednesday for another EEG. Will see the EP Cardio MD that ordered my implanted loop recorder, and also a new Neuro. so will be a full day. It takes us 3 hours in good weather to get there, so will be a 16-18 hour day. then i'm wiped out for 2 or 3 days after. What happend to good health and no worries.... HOPE you have a good week! Monica
Yes, I heard you guys were getting a lot of snow and cold weather. It hasn't been too bad here. I'm so glad the steroid is working for you. Wouldn't it be nice if we could stay on something like that. But they are really bad for us. At least it give us a repreave from the torment, and allows us to regroup in our attitude. That daily pounding on the old body really wears on a person's mental health.
Jen, you are such a blessing to me. Almost everyday I think about the butterfly thing and God builds on that. Thanks so much for sharing that. It's so awesome when God shows us things. To have someone so BIG and MIGHTY take time to show us that he's birthing something brand new and giving us a new beginning. Praise the Lord!
Praying everyday for you,
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