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12/09

So are you saying that all the autoimmune garbage did end? I can't see much point of even having it checked out. Everyone is so clueless about IFN-induced autoimmunity and even the team treating me act like they never heard of any of the SX. Arthritis, psoriasis, joint pain, hearing getting worse; hardly seems worth it to have been super responsive to IFN if it means I will now be allergic to myself. Decided not to seek medical attention and accept it all as permanent. Maybe I'll be pleasantly surprised some day if it goes away?

newleaf09

12/09

Came across a year old post of yours about autoimmune SX of treatment that you could not shake. I'm 6 mos. post EOT and bumping into the same issues. It's a year since your post. Have things cleared up for you by now? Thanks.

proud48

06/09

Thinking of you! Hello Pearl, I still have many problems. My cell counts are still down...platelets, WBC, RBCs so my oncologist did a bone marrow biopsy last week. I'm waiting on the results. I have no energy and losing weight. I'm enjoying my flowers and garden :) So good to hear from you. Love proud48

proud48

02/09

Thanks Pearl, I am still having a rough time...I need to have neuro surgery because I have bone spurs on C5 C6 that are pressing on my spinal cord. It is very scary. I still have many problems from tx and I wish I could say I'm back to normal but I'm not. You are sweet to think of me. I really appreciate your thoughtfulness. It lifts my spirit when someone takes the time to say hello. I am so happy for you. :>) Hugs, proud48

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