About Me: Female, 39, Boston, MA, member since Jan 2011
Used to be a much better version of what I am now... Hopefully someday I will delete this and be able to write something happier. I have MS, Fibro, and a mixed connective tissue disorder( a mixture of symptoms of Lupus, Scleroderma, and Myocistis).. I have an amazing so
[More]n, Thomas, 12 years old...and he's an old soul... My air...and not a good support system.. = ) : (....
You are in my thoughts and prayers.
I read your story and I must say, although I am not exactly like you, I do understand your pain and fears. You really touched me when you mentioned being in your PJ's everyday and how vibrant you use to be... Thats me all the way! Have you ever heard of a fentanyl patch for pain control? That is what I am using and although it doesnt wipe away the pain, it sure can take the edge off plus it has very mild side effects and very low risk for dependency! Keep me posted on your life with Fibromyalgia!
Hello, I just read your post. I am so sorry that this has you so scared and hurting. I wish that we could just touch these arrogant doctors and transfer our pain to them for just a moment. They would be jumping to find a med that worked. I hope that the doc you are going to see will help you. You're in my thoughts.
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