Hope you saw my PM in response to your Note.
I got a lot of help from forum members (most of them gone now) when I first found MH and I stuck around to try to pay it forward. Hope I was able to help. Wasn't online much yesterday, but getting ready to go take a look at things.
Hi there. Sorry I haven't responded to you; I've had some personal issues going on, so haven't been online as much as usual. I did go look at your post and responded to it. Hope it helps. We can work on your issues together, and I'm sure some of the others will chime in with ideas, as well.
Just a quick note to say hi! Been diagnosed 2x with ALS but doctors are running some other tests again because I am progressing at a slower rate than 'usual' als patients. Obviously my body is not the 'usual' or norm anyway. I have had weakness, atrophy of muscles, fasciulations or twitches, babinski reflex, speech hesitancy, slurring and saliva issues, hoarseness, two footdrops, and problems with fine motor skills. Also hyperreflexia, and lots of trouble walking. All of my neuro clinical tests I have had 'positives' on including unable to touch my nose with finger, balance while closing my eyes...etc. It has been a hard two years of not knowing and then be back on the undiagnosed wagon 'just to make sure'. I doubt you have any updates on you since yesterday, but keep me updated!