About Me: Female, 54, Boise, ID, member since Mar 2011
I suffered from severe endometriosis in my 20's and 30's. It resulted in a partial hysterectomy, then my ovaries were removed 5 years later. I was in terrible pain, beginning at around age 31. Constant pelvic pain. It was horrible. It really affected my quality of life
[More] and thus began my descent into the world of narcotics. Now I am 49, 10 years into what was surgical menopause. The most drastic horrible form of menopause you can experience. Still, the doctors have not been able to find a correct formula for my HRT. I suffer daily of course. AWFUL hot flases, nausea from the hot flashes. Depression, migraines. Decreased libido. My body is completely out of whack, and still I am a chronic pain sufferer. I suffer from what the head of gyn at Chapel Hill Med Center called "Deep Chronic Pelvic Pain Syndrome". He looked me in the eye, said there was no cure, that I had to make peace with living with this the rest of my life and proceded to write out a script for Oxycontin. The Oxy was diasastrous for me, and I've been on Percocet and Norco instead. I just this morning read about a technique called 'body rolling'. I'm going to get a ball today and start this. Nothing can hurt at this point. I've tried physical therapy, yoga, meditation, so many things I've forgotten most of them. And all to no avail. I'm sooo incredibly tired of this-really, there are no words to describe this. I am suffering terribly, daily, endlessly. I know I have alot of adhesions, but as the doc said, they can go in with a lap about twice a year and ablate the adhesions, but of course, they come right back. Hence the 2 X a year surgery. I'm desperate! If anyone knows of anything that can help me, PLEASE let me know. Also, I suffer from migraine/tension headaches. Which is as fun as the pelvic pain. Ha! Pain at both ends basically. And when I get a migraine, boy do I suffer. They are pretty frequent, at least 2 to 3 times a month. And I suffer with mild bi-polar disorder and depression and anxiety. Who wouldn't with the other 2 horrible problems?! I'm on too much medicine. I've gained 50 pounds from all of this, the meds, depression eating, hormone problems, etc...and a defunct thyroid, which I also take daily meds for. I'm so unhappy! I've become engaged to the most beautiful-inside and out-Italian man. He is so worried for me, with these problems and all of this medicine. I can't be the best me, because I'm wiped out from the pain and the meds. I need some help and advice-PLEASE! anyone??? any ideas??? I'm open to anything at this point. I want my life back! I'm so easy going, easy to talk to, and do my best to embrace and love life. I just want to feel good again. I don't want to swallow ridiculous amounts of narcotics every day just so that I can stand up or walk. I want to enjoy what time I have with this wonderful man. Every minute of it. And to be able to run and jump and love life with my grandchildren when they come someday. Plus, I'll be moving to Italy in about 2 years, and their medical system is so different from ours. I found that out this last summer when I ran out of my meds there. It was an interesting experience. The doc had never encountered someone like me-with my plethora of problems. He did his best to help me, but it was still very difficult. I'm now also at the point where the Norco is not strong enough anymore, and will be addressing this next week with my pain management doctor. I've finally hit the point where I need stronger narcotics and wow, do I hate this. Well, I'm open to suggestions y'all! HELP ME!
Love to all,
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