"My son has chromosome 10p14-15.1 deletion. He will be three in May.
He has mod./severe hearing loss in both ears.
He has one functioning kidney - the other multicystic
Has had successful heart surgery for ASD, VSD and MPS.
I am not sure what chromosome 10p 14, 15 is but my son is turning 2 and I suspect he may have ehler danlos syndrome. I have all the symptoms of it as well. I too live in EP TX. Very frustrating that there are no real doctors here
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