I am a stay at home mom to two children with another on the way. I am just beginning the homeschooling journey with my eldest. I am married to a wonderful man who serves in the active army reserves. I love God and want more than anything for my life to please Him and am
[More] thankful for the grace I receive through Jesus.
I likely had juvenile rheumatoid arthritis as a child though I wasn't diagnosed until 1995 when I was 17. I have had raynauds since at least 12 years old as well as bilateral joint pain that comes and goes since around the same time. It's been a long and confusing road:) I have a 5 year old son who shows signs of an autoimmune disease as well. Scares me to death to be honest. I didn't realize until his struggles began that my way of dealing with my own pain and issues was not the best and wasn't working... Since around 2005 when a rheumatologist basically wrote me off after I told him of my growing list of issues. I decided I wouldn't go through that again. I thought I would just view my abnormalities as "my normal". I realize now that these diseases are confusing and require tremendous patience. I've also found figuring out little adjustments and some big I can make can feel empowering and make big or small differences in my symptoms. I am joining this group because even close friends just don't understand. But that doesn't make the symptoms any less real and difficult.
2 Corinthians 12:7-10
....there was given me a thorn in my flesh, a messenger of Satan, to torment me. Three times I pleaded with the Lord to take it away from me. But he said to me, "My grace is sufficient for you, for my power is made perfect in weakness." Therefore I will boast all the more gladly about my weaknesses, so that Christ's power may rest on me. That is why, for Christ's sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.
Just a quick note to say hi!
The weather is nice in Queensland Gold Coast (700 miles north of Sydney) where we live. It's like Miami but not so hot. Winter is nice because it doesn't really get too cold with intermittant sun and rain showers during the day most days which is nice. Jeans and a flannel shirt is usually warm enough. nights get colder and clear. Summer is less comfortable because it gets humid for about 3 months and hotter, but the aches and pains aren't as bad. Us old folks suffer..........blah blah..
Hope you feel better soon!
Hi - don't wear jewelry (us tough Aussie blokes don't) mmm.... I can't stand anything tight around my neck because it does feel like you say; that it's choking me a bit. Have to find T shirts with V necks for instance. went to the doc yesterday for a prescription top up and he can't suggest anything more. I take stemetil sometimes which helps the dizzies a bit for a short time but that's all. Been awake all night with a really sore stiff neck and 'world class' headache from it. Weather is cold and wet and I think I spent too much time at the computer yesterday which makes my neck ache more, Have to stretch. Don't let it get you down - try not to dwell on things too much. regards, Kev
Just a quick note to say hi!
I have similar problems and also get sudden dizzy turns occasionally but frequent periods of disequalibrium and balance problems - like I'm on a boat moving around. Especially when I do something physical like cleaning the car and looking up or down. When I have to pick something up for instance, I bend my knees and keep my head looking straight ahead and grab it by 'feel'. Do you have any balance problems? I've never fallen over, but just feel 'drunk'. (I don'y really drink so thats not it)
best wishes, Kev
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