Thanks they actually unfused my c1 during the decompression surgery and I worked with a chiropracter before surgery that worked closely with Dr Oro so when I feel healed up enough I may have her help my neck I think I have cranial pressure so I don't think the CSF is good which I hope is the case since that would be an answer that could be fixed so it will all be good-one day at a time-best of luck to you!
Congrats on not having to have surgery-I am not an expert but would say all the other symptoms you have are definetly chiari related. I wouldn't do surgery until you can't go anymore because it is so huge and now that I am getting headaches again am hoping it was worth it. Your symptoms may just plateau and not get worse. I also have degenerative joints in neck that is in part to the chiari my c1 was fused to my skull so my neck is curved wrong! I learn something new everyday about it am going to a new NL on Tues and just pray he listens if not move on to another- Hope that helped and best of luck!
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