About Me: Female, 48, Tucson, AZ, member since May 2011
3/16/12 UPDATE: MGH and our Vermont Hepatologist referred us to Dr. Hugo Vargus, at the Mayo Clinic in Phoenix, AZ in December, 2011. We decided to buy an RV and travel (bucket list style). We ended up here for our Apt at the Mayo Clinic, only to be told, they have n
[More]ever treated anyone post transplant that have not transplanted at the Mayo Clinic . . . Go figure!!! So the dbl tx ribo/peg was stopped in December, and Gary's labs blood wise have started to rise a bit, but his liver enzymes, BUN, alk phos, and viral load have gone up . . . VL is now 18 mil compared to 1 mil in December! We are trying to figure out if searching for another clinic to tx him with the triple therapy is a good idea or not. MGH is not using the triple therapy on their post transplant patients, don't know why, but they just are not....Any advise will be appreciated . . . My husband was diagnosed with Hep C about 10 years ago. 16 months ago he had a liver transplant at MGH in Boston. Hep C is still very alive in his body. He has gone through Ribovirin and Interferon twice. Once before transplant and again over the past year. His viral load is still 1.2 million. The new liver does has some fibrosis. We just returned home from MGH after his second biopsy. We will see how the liver is doing in a few days. Maybe the treatment has worked, maybe not . . . . we have been through a lot and I would be happy to answer any questions you may have. Thanks!
My hubby saw his hepa last Thursday. CT scan results were clear, no sign of liver cancer. Lab results were good, liver is still compensated. Will have an endoscopy this month (routine screening). Next appt for labs, ultrasound, and follow up with hepa is May. She believes sofosbuvir will be submitted for approval about April, 2013, and be available for commercial use about the end of 2013. She believes that sofosbuvir treatment for difficult to treat G1a’s will be sofosbuvir combined with Interferon and Ribavirin. Hope all is well with you.
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