My biggest disability is 24/7 migraines which are often severe, caused by a major stroke about 5 years ago. I am now 61 years old. Plus I need 12 hours of sleep every night since my stroke or my migraines get a lot worse. I have many other medical problems as well in
[More]cluding kidney failure, stroke pain and disabilities, Trigeminal Neuralgia which causes electric shock like pain in my mouth, fibromyalgia, myoclonus which is involuntary jerking all through my body caused by my stroke, brain aneurysm, bletharitis which is pain in my eyes, acid reflux, obstructive and central brain sleep apnea, asthma, allergies, osteoporosis, hate to eat since my stroke, high blood pressure, hypothyroid, hyperparathyroid, rosacea, and depression (now treated with med). Also the Prolia injection gave me terrible bone and skin pain which seems to be permanent. The bone pain is my second biggest pain problem. I have learned to disassociate from most of my milder pain, but when it gets close to or a 10 out of 10, it's very difficult. I used to work more than full time, was politically active and had hobbies. Now can barely do much. I have FINALLY learned to appreciate what I have, accept that I am very disabled and be glad to be alive, since I can die any time from 2 of my medical conditions. What has led me to be accepting are the stories of others who have it far worse than I do, but have great attitudes. But I will say that the ER trips with unbearable migraine pain, the Trigeminal nerve pain which is also called "suicide disease" (because it is one of the most painful conditions known), were not nearly as painful as my severe depression.
Just a quick note to say hi! sara I was reading something in a medical write up. like the pace makers they put on youreart. they are now putting them in the brain to stimulate the part of the brain that is not working properly. they are doing miracles now. I thought about you when I read this. good luck sweetie. love Charlene (mandy876)
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