About Me: Female, hayward, CA, member since Jul 2011
I am one week into my detox from a 7 year use of Methadone for a rare chronic pain disorder.
I am 48 and was diagnosed with Pudendal Nerve Entrapment (PNE) just weeks be
[More]frore being scheduled for a female rectocele repair (herniation in the vaginal wall).
PNE is rare, very few people have it and there are very few Drs who treat it, it is still in its infancy as far as accessing Dr who know what to do for you and how they treat it, because PNE can have varying degreees and everyone and the causes are many for the condiiton.
The Pudendal is a large nerve that travels bi laterally from the spine and down very deep in the buttocks through two different passagesm one being the Alcocks passage along with the sciatia nerve.
So basically the Pudendal nerve feeds all the nerve functions for the netire crotch area, Uro,Gyno, and rectally, so you have intense pain in all these areas insides and out. It like have a bad bladder infection and vaginal infection, as far as pain and burning involved.
People with this condiiton will do about anything to get rid of the pain, and some can't relieve from meds and get soo hopeless they commit suicide. YOu never get to sit like a regular person and have to carry a donut shape cushion to help you so you don't sit on the nerve and progress the condiiton, which in the long run if you didn't listed to your pain and if you didn't try to preserve what is already dmamged, then you can lose bladder and bowel function.
The female rectocele repair went from one to four surgeries on my privates in less than one yearm so this really made the pudenal pain unbearable so after spending a year recouping from curgeris, I was on vicodin at first, but it just didn't work so they put me on Methadone and Neurontin for pain.
Right now it's just all about the detox process.
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