Hi Sue
My daughter was diagnosed with CH at 19 days old, she is 3 years old now and she has exactly the same problem Rachel had. Her speech is really poor and it looks like she has her own language that she uses when she doesn't know how to say something, which is often. In the next week or so we will have her evaluated for speech.
Since you posted a few years ago I would love to know how is Rachel doing now.
My email is ***@****
Thank you!
Monica