About Me: Female, 39, Lee's Summit, MO, member since Nov 2011
I am a 37 year old married mother of 2 girls. I spent 2010-2011 struggling with physical conditions that my PCP could not find a root cause for. No medication was helping and tests were all coming back negative. Finally she sent me for an MRI to check for MS and I wa
[More]s diagnosed with Ciari. I am early in this journey. I have recently been diagnosed (December 2011) with Chiari Malformation 1 with 12.5 mm herniated tonsils and diminished CSF flow, Ehlers Danlos Syndrome, and Psuedotumer. It looks like there is a long road ahead. I traveled to Colorado to meet my neurosurgeon Dr. Oro and I feel that he is very thorough and it is nice to finally have some answers regarding my health. Updated 1/21/12 I have since found that I have emphesyma (due to EDS), Osteoarthritis, Diverticulosis, Empty Sella, and they suspect fibromyalgia. I amscheduled to have decompression surgery on 2/9/12 in Aurora Co by Dr. Oro.
Good morning to the oldies and welcome to the newbies!
Are you grateful for how far you have come or are you grieving the part of the journey that is not as you planned? Often our perception is what makes the difference. I am grateful! :)
my daughter has broke (moved on to semi finals) in every debate/forensic competition she has been in and this is her first year! I am one proud Mom:)
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