Also if you email me I will give u my phone number and u can call me. I would love to talk. It would be easier over the phone. I know what it is like to be in your spot. I would love to help u through this not being pushy but everyone needs a support that fully understands first hand. And I truly do. I have one doc that tells me every visit that if I would loose 130lbs I would be well..... I do not like him. Lol. My NS has explained everything. And I like his reasons much better. Lol. Sorry for my rant. I don't meet many people that has what I do. And I hope I can help in some small way. I feel for you.
Just a quick note to say hi! Please contact me if you want more info or just to talk to someone who understands (I have PTC. VP shunt already in 90% good days now and chiari doing better). I was where you are a year ago. My phone doesn't like med help much though. I am Angela Fisher on FB. I would love to talk to you more. Or email. ***@****. Kids took over my laptop. Lol. Sorry. Please contact.
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