and as you know, there are no blood tests, scans or xrays that will show or confirm fibromyalgis, so it defintely takes a good doctor to listen to you and how you are feeling and not dismiss anything you are telling them. I'm so glad you've found a good doctor.
I most certainly am not the most knowledgeable about lupus and fibro, but I do have personal experience with them both, so any time you have any questions, feel free to ask - I may or may not be able to help, but I'll do whatever I can.
Oh - and I'm not sure if you've been told or not - as tempting as it is to spend lots of time out in the sunshine on these nice days, that's one of the worst things you can do with lupus. Spending too much time in the sun can definitely increase your symptoms and send you into a horrible flare.
Ahhh yes - the Double Whammy club! What fun! LOL It's good you have a really good mattress - decent sleep is so important to everyone, but I think even more so for those of us with fibro. Of course, sleep problems are one major symptom of fibro and it can definitely be a vicious circle - we can't sleep because we are hurting and we are hurting more because we are not getting enough (or adequate) sleep. Your situation is yet another testiment to being our own medical advocates - we know our bodies better than anyone and when we "know" something is not right, it's important to keep after the doctors to keep searching for the reason. Unfortunately, all too often, when things such as bloodwork and/or xrays come back "normal", too many doctors tend to dismiss our symptoms..
Also meant to mention that stomach problems can and do go along with both fibro and lupus, so it could be one or both of those that are giving you your tummy troubles. That's actually how my lupus was diagnosed - I was in the hospital with tummy troubles that my doc said are typically only seen in either a certain type of cancer or lupus. Fortunately, all my cancer testing came back negative, so he pursued the lupus route further and sure enough, positive for it! So if you're having testing, etc., done and keep getting negative results for whatever they're checking for, ask your rheumy and GI doc whether they think it could be related to the lupus and/or fibro. Take care and keep in touch!
So glad you were finally properly diagnosed so that you can now begin treatment. I also have both lupus and fibromyalgia - joy, joy, joy -- NOT! LOL It's very good that you've got a good rheumy that you like and who listens to you - hopefully they can find a medication or combination of medications soon that will help with your symptoms. It sure can be a lot of trial and error sometimes.
I also live in Virginia - in King George county, which is about an hour north of Richmond. If I remember correctly, you are more in the beach vicinity? Is that correct? Weather certainly plays a big role in how I feel - this crazy up and down weather we've been having has really been taking a toll on me. I sure would love it if Mother Nature would make up her mind what she wants it to do.
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