Hi Katharine, my name is Kate from Chicago and I've had urticaria pigmentosa since I was a baby. I'm 27 now and still have problems with the spots, they partially went away in my teenage years but they still are bothersome. I know you posted this awhile back, but if you get this I'm at kate_flynn81***@**** if you'd like to chat.
Just a quick note to say hi!
I too have Urticaria Pigmentosa got my results from a skin biopsy on Friday and am pleased that finally someone has an answer to why my skin is turning into a total b""" mess. I too are finding life hard to cope with at the moment.
Trying to find what to eat for dinner is so bloody hard. Don't eat this or this well what can I eat?
Have the spots on my arms mainly and getting them also on my back, legs and face.
Would love to keep in touch. What country are you in? Me Australia
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