Hi. I've been suffering from lumbar puncture headaches for the last 4 months. I had a blood patch after 3 days of horrid spinal headaches. Though the headaches are now mild, I continue to have the dull/sharp/pressure headaches that do not subside when lying down. The headaches are not in one particular area of the head. They occur at the top, back and sides of the head and I get them 50+ times a day. Feeling very frustrated and depressed! Do you still have the headaches? If not, how long was your recovery period?
I'm having this same EXACT problem... It's driving me nuts. It has been happening to me for about 4 months now. I can't sleep at night... The vibrations happen all through my body... mostly when I'm in bed laying down and it also wakes me out of my sleep. Have you found anything to help with yours?
I would be very pleased if you tell me what the doctors said to you , because I have for months the same
trembling sensation you describe and I am so despair...
( I also stayed to the hospital for days,
because at the begining it was so difficult to describe this sensation and I was telling the doctors it was something like dizzines. They focused in my brain and they didn't found anything special...)
I have noticed that the more tired I am is getting worst...
The doctors don't know what to say and my nights become often an endless nightmare..
I'm new to this site and saw your post. Are you still having the internal shakes? I get this as well and no one knows what it is. I do have RA and Sjogren's Syndrome which are autoimmune. I wonder if there's a connection, since you also had a high ANA result? Let me know how you're feeling.
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