Do you have a retroflexed odontoid (can't remember if you told me) or a Connective Tissue Disorder? Just wondering. When you do go, make sure you advocate for yourself (I had 2 experiences with a few RNs) who refused to let me finish my sentences or describe my pain to them. Dr. B. straightened them out (in addition to my husband!!!) and I had no more difficulties after that. Courage to you, my friend. :)
Did you have your surgery yet? Mine was done on 6/20 with PFD and c1, c2 fusion by Dr. B. Everything went really well. Still have muscle spasms....but manageable....with meds. How are you and have you been through the surgery yet?
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