My son also has epicanthal folds. He has a crooked pinky, is VERY small, speech delayed, and has severe gasto-reflux disease. Did you find out anything about your daughter? My son is getting a genetic test next month that will hopefully answer our questions.
I wanted to give you a personal thank you for your reply regarding the antiVEGF drugs. Part of the purpose of this forum, I believe is to share information, not just medical information, but whatever can help and support those going through difficult situations. Your comments were informative and detailed, but just as importantly, you truly made me feel good by your interest and supportive words. I don't know your background or why you wrote, but thank you for doing so.
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