About Me: Female, 24, Northamptonshire, United Kingdom, member since Apr 2012
Hello, my name is Danielle I'm 22 and was diagnosed in aug 2009 with Arnold chiari malformation type 1 and syrongeymelia. A few months late I then was diagnosed with hydrocephalus.. I have a very severe ACM and syrongeymelia (I have 2 syrinxes) have had 13 operations to
[More] date due to bad luck and powerful syrinxes. I also have 1 programmable shunt in the head and 4 in the lungs/spine. I still get pain and weakness and vertigo but I use no aids to walk and apart from that, I'm just a happy young girl!
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