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alymoscher4

04/12

Hi Jessie, my name is Alysson Moscher. I have a daughter (2 yrs and 5 months) who is exactly as you describe. If you could please contact me directly on my email address (***@****) that would be very much appreciated. I would absolutely love to talk to you. Thanks very much.

Beckyhamre

02/11

Holy cow! Sounds exactly like my son. He will be 3 in April and still not walking, but uses a walker to get around and doing great!. He still only says a few words, but understand quite a bit. We have no idea what's going and has had every test done except a muscle biopsy. I'm a little hesitant to do it since he's already been through so much. He's currently wearing a patch on his eye to help with the bad one that tends to wonder. Please keep me informed on anything new.

Chido21

06/08

Hello I came across your post about your daughter and I was curious how your daughter is doing. I have a 7 month old son who has similar symptoms that your daughter. We have had the genetic testing done and it’s been normal long with a diagnose of hypotonia. He displays many of the symptoms you described in your post I am curious in finding out about the current state of your daughter. I noticed your post was 8 years old which I hope she is happy and healthy but any information you can share with me I would appreciate it. We feel we are running out of options and don’t know where else to turn. Thanks I look forward to hearing from you!!!!

Chido21

06/08

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